Self-care, identity and recovery
Managing ME/CFS varies for each person, but there are several treatment options available. The National Institute for Health and Care Excellence (NICE) provides recommendations and guidance for the diagnosis and management of ME/CFS.
Doctors should discuss all options with patients, explaining the benefits and risks, and work together to create a plan that fits the person's needs and preferences. This may include lifestyle changes, specialist treatments, or a combination of both. For severe symptoms, specialist advice should be sought. Treatment plans should be reviewed regularly to ensure they remain effective.
Self-care is often hampered by a sense of guilt or low self-worth. It is important to explore the importance of communication in self-care and encouraging without nagging! Every-One have produced a series of podcasts, hosted on Podbean, about this subject. These are listed below:
More information is available on the following websites:
In this section
- Energy Limiting Conditions Information Hub
- What is an Energy Limiting Condition (ELC)?
- Sleep and rest
- Stress
- Breathing
- Energy and pacing
- Gut health
- Wellbeing
- Family and personal networks
- Personal relationships and intimacy
- Self-care, identity and recovery
- Safeguarding
- Employers
- Children and young people
- Carers
- Local Support Groups & National Support Resources
