Support in Healthcare

What is Post-COVID syndrome/long COVID?

Emerging evidence and patient testimony is showing a growing number of people who contract COVID-19 cannot shake off the effects of the virus months after initially falling ill. Symptoms are wide-ranging and fluctuating, and can include breathlessness, chronic fatigue, “brain fog”, anxiety and stress.

The long-term effects of COVID-19 are often referred to interchangeably as long COVID and post-COVID syndrome. The National Institute for Clinical Excellence (NICE)/Scottish Intercollegiate Guidelines Network/Royal College of General Practitioners guidance on managing long-term effects of COVID-19 (updated November 2021) gives the following clinical definitions below:

  • ongoing symptomatic COVID-19: signs and symptoms of COVID-19 from four to 12 weeks
  • post COVID-19 syndrome: signs and symptoms that develop during or after COVID-19 and continue for more than 12 weeks and are not explained by an alternative diagnosis.

While we have learned lots about COVID-19 since the start of the pandemic – and new treatments are available – the long term effects of the illness can be debilitating, even for young, fit people, or those who did not go to hospital when they had COVID-19 symptoms initially.

Above wording extracted from: https://www.england.nhs.uk/coronavirus/post-covid-syndrome-long-covid/

Living with the Challenges of Long/Post COVID and Managing Excessive Fatigue

A guide to offer understanding, information and signposting to further resources to support the challenges of living with Long/Post COVID.

This publication has been funded by NHS Charities Together and supported by LVET, Shine Lincolnshire, Every-One, Active Lincolnshire, and Connect to Support Lincolnshire.

Living with the Challenges of Long/Post COVID and Managing Excessive Fatigue (PDF)

Further useful information/guidance can be found by clicking on the sections below.

The Lincolnshire Post-COVID Rehabilitation Service is for people in Lincolnshire who are experiencing ongoing symptoms of COVID-19. Multiple services meet virtually to discuss which services might be best placed to help patients with their recovery, personalised care plans are created, and patients receive regular follow up from the team. Referrals are to be made via your GP.

The team can be contacted on 01522 449799 during office hours or by email: lhnt.lincspostcovidrehab@nhs.net

You can follow the team on their X (Twitter) account - @LincsCovidRehab or see our YouTube channel to find useful videos.

Lincolnshire Post-COVID Rehabilitation Service (PowerPoint presentation)

In this video, Lynsey Woodman talks about the Lincolnshire Post COVID Service, symptoms, and how people can help themselves.

 

Resources
Patient Information

Long Covid: a booklet for people who have signs and symptoms that continue or develop after acute Covid-19 (SIGN/NICE/RCGP)

Long-term effects of coronavirus (long COVID) (NHS)

Long COVID: what support is available? (Patient)

What is the latest advice on long COVID symptoms and treatment? (Patient)

What are the long-term health impacts of coronavirus? (Patient)

How could long COVID impact your mental health? (Patient)

Long Covid: the symptoms and tips for recovery (British Heart Foundation)

Living with long COVID (Age UK)

A guide to advice in managing Post-Viral Fatigue - British Association of Clinicians in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (BACME)

Covid-19: Supporting your recovery (NHS Lancashire Teaching Hospitals)

 

Books
  • Coping with long Covid and other long-term health conditions: practical and psychological strategies for self-help (2021), Sheila Granger and Dr Sue Peacock. ISBN: 978-1527299733
  • Coping with Long COVID: a practical guide (2021), Dr E. Kelly. ISBN: 979-8547746987
  • COVID and post-COVID recovery: DoctorVee’s 6-point plan (2021), Dr Vishakha Shivdasani. ISBN: 978-9354224119

 

Podcasts

TLC Sessions - Living with Long Covid

BBC Radio 5 Live – Long Covid 

Spotify – Long Covid Podcast

Encephalitis Society - COVID-19

BBC Radio 4 – Long Covid revisited

Integrated Care Systems (ICSs) are partnerships that bring together providers and commissioners of NHS services (which includes GPs) across a geographical area with local authorities and other local partners to collectively plan health and care services to meet the needs of their population.

For more information, visit: https://lincolnshire.icb.nhs.uk/

For information about GP Services, visit: Your GP Practice (Lincolnshire ICB)

If you feel you have continual Long COVID symptoms, you may be referred by your GP to the Long COVID clinic.

Further details are explained by Dr Mughal in this video: https://youtu.be/jMbGBnC0Lec

Shine Lincolnshire is a countywide charity which aims to support people with poor mental health to live well through accessing a range of support services. Go to their website to find the latest Connect newsletter.

Click on the link below to hear Jo Castro, Senior Peer Support Coordinator, from Shine Lincolnshire talking about Peer Support for people with Long COVID: NHSCT Long COVID - Jo Castro and Peer Support

For peer support groups in your area, see Long COVID Peer Support Groups.

What is social prescribing?

Many of life’s problems can make us feel unwell. Sometimes we all need a bit of support to help us get through the tough times.

Social prescribing is where a person can be put in touch with a Social Prescribing Link Worker. A Link Worker’s role is to ask what’s important to that person and help them find the right support. Social Prescribing Link Workers can connect people to a wide range of non-medical support within the community.

For more information, visit: https://lvet.co.uk/social-prescribing/

Mental Health

The impact and experience of the COVID-19 outbreak has been different for everyone, that’s why it’s important to look after our mental wellbeing. The NHS Every Mind Matters website offers information and advice on what support is out there to help you. Take the Your Mind Plan quiz to see what works for you.

Find information and a self-referral form at Lincolnshire Talking Therapies. They provide talking therapies for people aged 16 years and older who are experiencing problems with anxiety, depression, and stress. 

Whether you're concerned about yourself or a loved one, visit the NHS website to find out how to access mental health services and where to get urgent help.

 

One You Lincolnshire 

Visit oneyoulincolnshire.org.uk to sign up for Lincolnshire's free health and wellbeing programmes.

 

Nutrition

Find information to support recovery from COVID-19 through nutritional care on the Nutrition and COVID-19 recovery knowledge hub (University of Plymouth)

Vaccination is different from giving medicine to an unwell person to make them better. The benefits of vaccination are invisible. The idea is that you or your child won't become ill from the disease that the vaccine prevents.

All medicines have side effects, however, vaccines are among the safest medicines and the benefits of vaccinations far outweigh the risk of side effects. They're not 100% effective in every person, but they're the best defence against the epidemics that used to kill or permanently disable millions of children and adults.

 

For Routine Vaccinations

checklist of the vaccines that are routinely offered to everyone in the UK free of charge on the NHS, and the ages at which they should ideally be given, can be found on the NHS website.

The list includes vaccines for special groups and travel vaccines available free on the NHS.

 

Adult Immunisations

Most adults between the ages of 18 and 65 do not normally need vaccines unless they are at greater risk of contracting a specific disease. This risk can be increased due to occupation, pregnancy, illness, treatment for certain conditions, a suppressed immune system, injury or travelling to areas where diseases are more prevalent. People over the age of 65 are also considered to be an "at risk" group.

The vaccines available for "at risk" people include Flu, Chickenpox, BCG (TB), Hepatitis B, MMR (for non-immune adults) and MenACWY (for students).

Vaccinations for pregnant women include Whooping cough and DTaP/IPV (4-in-1 diphtheria, tetanus, pertussis and polio). For further information about vaccinations during pregnancy please visit the NHS website.

The vaccines available for over 65s include Pneumococcal PPV vaccine and the annual Flu vaccine.

There is also an additional Shingles vaccine for over 70s.

 

COVID-19 vaccination services

COVID-19 vaccine

Find a walk-in COVID-19 vaccination site

Choose your COVID-19 vaccination invitation preference

 

Flu Vaccines

Many adults, most children and all pregnant women are eligible for a free flu vaccine. Find out who is eligible and where you can get the flu vaccine at https://www.nhs.uk/vaccinations/flu-vaccine/.

 

Children's Immunisations

All medicines have side effects. However, vaccines are among the safest and the benefits of vaccinations far outweigh the risk of side effects.

Having a vaccination is much safer than not having one. They're not 100% effective in every child, but they're the best defence against the epidemics that used to kill or permanently disable millions of children and adults.

When you're considering a vaccination for yourself or your child, it's natural to focus on the potential side effects. But a better approach is to try to balance the benefits of having a vaccine against the chances of harm. Further information about vaccinations can be found on the NHS website.

Specific information about side effects of vaccines and medicines can be found via pharmaceutical company websites or patient information leaflets. If you do not have the patient information leaflet, you can view one via the electronic Medicines Compendium (eMC).

If you think that you or someone you are with may be having a serious allergic reaction to a medicine, phone 999 and ask for immediate medical help.

Contact your GP or pharmacist immediately if:

  • you think you have a side effect that is listed as severe in your medicine's patient information leaflet (PIL)
  • you have a side effect you think is serious

You don't need to see your GP with mild side effects, such as nausea, if you feel you can manage these on your own. Your pharmacist should also be able to tell you if the side effects need further investigation by your GP.

If you have questions or concerns before a vaccination, speak to your GP or health professional.